Category : hATTR amyloidosis
My hATTR Amyloidosis Story: A Diagnosis Leads to Advocacy
Jean Williams, 65, has been seeing the same primary care physician for years. Perhaps this familiarity afforded her the ease with which to openly discuss...
hATTR: No Longer a Rare Diagnosis
You’ve probably not heard much about amyloidosis, a group of conditions caused by the buildup in the body of misfolded transthyretin (TTR) proteins called amyloid...
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series
We Have What? hATTR Amyloidosis: My Family’s Journey Every so often an opinion poll goes around on social media asking if folks would want to...
6 Reasons to Get a DNA Test
Should you get a DNA test? When used for health reasons, DNA testing is utilized to give specific information so you can make decisions about...
Under Diagnosed but Treatable: The hATTR Amyloidosis Story
Under Diagnosed but Treatable: The hATTR Amyloidosis Story Question: What’s a rare disease you’ve probably never heard of that’s not really all that rare? Answer:...
Living With hATTR Amyloidosis: CeCe’s Story
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series Living With hATTR Amyloidosis: CeCe’s Story For several years, CeCe was living with mysterious health...