My hATTR Amyloidosis Story: A Diagnosis Leads to Advocacy
Jean Williams, 65, has been seeing the same primary care physician for years. Perhaps this familiarity afforded her the ease with which to openly discuss...
Category : hATTR amyloidosis
Rare Diseases and African Americans
Rare Diseases and African Americans The National Institutes of Health Office of Rare Diseases defines a rare disease as one affecting less than 200,000 people...
Your Family History and Hereditary ATTR Amyloidosis
Amyloidosis is a group of conditions caused by the buildup of amyloid fibrils in the body. Each type is caused by a different misfolded protein....
We Have What? hATTR Amyloidosis: My Family’s Journey
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series We Have What? hATTR Amyloidosis: My Family’s Journey Every so often an opinion poll goes...
My hATTR Amyloidosis Story: Rare Disease Is Just a Bump in the Road for Wheeler
Fighting on the battlefields of the Korean War didn’t prepare Wheeler for a diagnosis of hereditary ATTR (hATTR) amyloidosis, a rare disease characterized by the...
6 Reasons to Get a DNA Test
Should you get a DNA test? When used for health reasons, DNA testing is utilized to give specific information so you can make decisions about...
Under Diagnosed but Treatable: The hATTR Amyloidosis Story
Under Diagnosed but Treatable: The hATTR Amyloidosis Story Question: What’s a rare disease you’ve probably never heard of that’s not really all that rare? Answer:...
Dr. Ella Horton Speaks About Rare Diseases
ALL MONTH LONG WE’VE BEEN CELEBRATING BLACK HISTORY MONTH AND FEBRUARY COMES TO A CLOSE WITH RARE DISEASE DAY ON FEBURARY THE 28TH. HERE...
Living With hATTR Amyloidosis: CeCe’s Story
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series Living With hATTR Amyloidosis: CeCe’s Story For several years, CeCe was living with mysterious health...
