My hATTR Amyloidosis Story: Rare Disease Is Just a Bump in the Road for Wheeler
Fighting on the battlefields of the Korean War didn’t prepare Wheeler for a diagnosis of hereditary ATTR (hATTR) amyloidosis, a rare disease characterized by the...
Category : hATTR amyloidosis
6 Reasons to Get a DNA Test
Should you get a DNA test? When used for health reasons, DNA testing is utilized to give specific information so you can make decisions about...
Under Diagnosed but Treatable: The hATTR Amyloidosis Story
Under Diagnosed but Treatable: The hATTR Amyloidosis Story Question: What’s a rare disease you’ve probably never heard of that’s not really all that rare? Answer:...
Dr. Ella Horton Speaks about Rare Diseases
ALL MONTH LONG WE’VE BEEN CELEBRATING BLACK HISTORY MONTH AND FEBRUARY COMES TO A CLOSE WITH RARE DISEASE DAY ON FEBURARY THE 28TH. HERE...
We Have What? hATTR Amyloidosis: My Family’s Journey
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series We Have What? hATTR Amyloidosis: My Family’s Journey Every so often an opinion poll goes...
Rare Diseases and African Americans
Rare Diseases and African Americans The National Institutes of Health Office of Rare Diseases defines a rare disease as one affecting less than 200,000 people...
Living With hATTR Amyloidosis: CeCe’s Story
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series Living With hATTR Amyloidosis: CeCe’s Story For several years, CeCe was living with mysterious health...
Your Family History and Hereditary ATTR Amyloidosis
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series Your Family History and Hereditary ATTR (hATTR) Amyloidosis Amyloidosis is a group of conditions...
