hATTR: No Longer a Rare Diagnosis
You’ve probably not heard much about amyloidosis, a group of conditions caused by the buildup in the body of misfolded transthyretin (TTR) proteins called amyloid...
Category : hATTR amyloidosis
My hATTR Amyloidosis Story: A Diagnosis Leads to Advocacy
Jean Williams, 65, has been seeing the same primary care physician for years. Perhaps this familiarity afforded her the ease with which to openly discuss...
Rare Diseases and African Americans
Rare Diseases and African Americans The National Institutes of Health Office of Rare Diseases defines a rare disease as one affecting less than 200,000 people...
Your Family History and Hereditary ATTR Amyloidosis
Amyloidosis is a group of conditions caused by the buildup of amyloid fibrils in the body. Each type is caused by a different misfolded protein....
We Have What? hATTR Amyloidosis: My Family’s Journey
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series We Have What? hATTR Amyloidosis: My Family’s Journey Every so often an opinion poll goes...
6 Reasons to Get a DNA Test
Should you get a DNA test? When used for health reasons, DNA testing is utilized to give specific information so you can make decisions about...
Under Diagnosed but Treatable: The hATTR Amyloidosis Story
Under Diagnosed but Treatable: The hATTR Amyloidosis Story Question: What’s a rare disease you’ve probably never heard of that’s not really all that rare? Answer:...
Dr. Ella Horton Speaks About Rare Diseases
ALL MONTH LONG WE’VE BEEN CELEBRATING BLACK HISTORY MONTH AND FEBRUARY COMES TO A CLOSE WITH RARE DISEASE DAY ON FEBURARY THE 28TH. HERE...
Living With hATTR Amyloidosis: CeCe’s Story
Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series Living With hATTR Amyloidosis: CeCe’s Story For several years, CeCe was living with mysterious health...
