HATTR amyloidosis

My hATTR Amyloidosis Story: A Diagnosis Leads to Advocacy

Jean Williams, 65, has been seeing the same primary care physician for years. Perhaps this familiarity afforded her the ease with which to openly...

hATTR: No Longer a Rare Diagnosis

You’ve probably not heard much about amyloidosis, a group of conditions caused by the buildup in the body of misfolded transthyretin (TTR) proteins called...

Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series

We Have What? hATTR Amyloidosis: My Family’s Journey Every so often an opinion poll goes around on social media asking if folks would want to...

Black Health Matters and Alnylam Partner to Raise Awareness of Hereditary ATTR Amyloidosis

-- African Americans are at an increased risk of carrying a genetic mutation associated with hereditary ATTR amyloidosis –   -- Partnership is a continuation of...

6 Reasons to Get a DNA Test

Should you get a DNA test? When used for health reasons, DNA testing is utilized to give specific information so you can make decisions...

Under Diagnosed but Treatable: The hATTR Amyloidosis Story

Under Diagnosed but Treatable: The hATTR Amyloidosis Story Question: What’s a rare disease you’ve probably never heard of that’s not really all that rare? Answer: On...

Living With hATTR Amyloidosis: CeCe’s Story

Black Health Matters and Alnylam Pharmaceuticals: Understanding hATTR Amyloidosis Series Living With hATTR Amyloidosis: CeCe’s Story For several years, CeCe was living with mysterious health challenges....

Powered by