CAR T-cell therapy is a relatively new and promising form of therapy for certain types of cancer. It involves taking a patient’s cells and using them to target and destroy cancer cells. All patients undergoing CAR T-cell therapy will need at least one caregiver who is available 24/7 before, during, and after the infusion for a total of 4-8 weeks. They should be available to help with daily tasks.

Ideal caregiver criteria includes dependable family or friends over the age of 18 who can commit to the time requirements and are healthy and not exhibiting any signs of infection. An ideal caregiver should also be able to connect with the patient on an emotional level in order to better support them throughout the treatment process.

CAR T-cell therapy can be a life-changing cancer treatment. Your support as a caregiver will significantly impact your loved ones recovery. You should consult with the healthcare team for guidance and recommendations specific to your loved one’s care. Educating yourself about CAR T-cell therapy and What is CAR T-cell is a great place to begin your caregiver journey.

Caregiver Tasks

Being a caregiver encompasses a wide range of tasks and responsibilities. The ultimate goal is to provide care and support during a vulnerable time in your loved one’s health journey. Caregiver tasks can vary, so being flexible is a must. It is also important to be patient, empathetic, and committed to the person you are caring for.

Common caregiver responsibilities include:

• Communicating with the healthcare team
• Advocating for your loved one
• Providing encouragement and emotional support
• Helping with daily tasks such as preparing meals, providing transportation, and helping around the house
• Assisting with managing medications
• Monitoring symptoms and side effects
• Ensuring adequate nutrition and hydration

Caregiver Challenges

Being a caregiver is a rewarding experience, but it does come with its challenges. The demand of being a caregiver while managing your own life can lead to stress and burnout.

You may be challenged emotionally as you walk with your loved one during their treatment. You may be challenged mentally as you may feel isolated. You may be challenged physically as you handle stress and the pressure of day to day responsibilities. As a caregiver, you must proactively seek support to help you navigate this new journey and promote well-being.

Caring for Yourself

You must take care of yourself.

Practical ways to prioritize self care:

• Set boundaries. It’s okay to take breaks and say no.
• Delegate tasks. Don’t be afraid to ask for help from others.
• Develop a self-care routine. Whether it’s a monthly massage or taking a few minutes each day to meditate.
• Prioritize sleep. Lack of sleep can lead to burnout. Aim to get adequate rest each night.
• Consider counseling or therapy. Talking to a professional can help manage stress and anxiety.
• Connect with a support group. Joining a caregiver support group can help you connect with others who are on a similar journey.

Being a caregiver is a role filled with love and sacrifice. As a caregiver it’s important to remember that taking care of yourself is an important part of ensuring you are able to care for others.

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References

• Centers for Disease Control and Prevention. Caregiving for Family and Friends – A Public Health Issue
• Centers for Disease Control and Prevention. Caring for Yourself When Caring for Another
• American Association of Retired Persons. Valuing the Invaluable 2023
• American Cancer Society. Caregivers and Family