The Sickle Cell Disease Association of America received the Abbey S. Meyers Leadership Award from the National Organization for Rare Disorders. The award honors organizations that serve members with solid leadership in advocacy and education. The Sickle Cell Disease Association will receive its award on June 26th during the National Organization for Rare Disorders' Living Rare, Live Stronger Patient and Family forum. It will be a live ceremony at the Rock & Roll Hall of Fame in Cleveland, OH.

A new report is calling on the National Institutes of Health to designate sickle cell disease a health disparity to help accelerate research on...

Shavonn Burgess was ecstatic to welcome her new bundle of joy, Kennedy, to the family after her birth in July, 2016. Unfortunately, a postcard...

About 100,000 people in the United States live with sickle cell disease—most of them African American. But every baby born here is tested for...

India Hardy has lived with sickle cell pain since she was a toddler—ranging from dull persistent aches to acute flare-ups that interrupt the flow...

More sickle cell patients survive. But care is hard to find for adults When Janoi Burgess was a child, he thought doctor appointments were fun. “I used...

Despite efforts to improve care for children with sickle cell disease, the nation falls short As the lead doctor of a team researching the quality...

The fight to research, illuminate, and one day eliminate sickle cell disease continues, and one its toughest fighters is receiving much needed help to...

Charlotte Curtis, Launches Podcast for People with SCD Sickle Cycle, a Sickle Cell Disease advocacy and awareness organization, has released a third installment of The...

“We need education. We need funding. We need research,” said Cassandra Dobson, director of nursing and undergraduate studies at City University of New York-Herbert...

This information is important for those who are planning to have children, particularly African Americans and those of West African ancestry. Children born into...

THE NEED FOR BLOOD Every two seconds someone in the U.S. needs blood. Blood cannot be manufactured. It can only come from generous, human...

What is Beta Thalassemia Trait? Beta thalassemia trait, also called beta thalassemia minor, occurs when an individual inherits a normal geneform one parent and the...

In 2003, Jeffrey Zuttah was captain of his state championship football team and an academic whiz kid who dreamed of playing college football. An...

September is not just “back-to-school” month; it’s National Sickle Cell Awareness Month—a month selected to call attention to a life-long illness affecting around 100,000...