Shining the Light on Sickle Cell Anemia for Six Years

June 19th is not only the day we celebrate Juneteenth, but this year will also be the 16th anniversary of World Sickle Cell Awareness...

What is Sickle Cell?

Sickle cell anemia is a hereditary blood disorder characterized by abnormally shaped red blood cells, which assume a crescent or “sickle” shape instead of their usual round shape.

This abnormality causes the red blood cells to become rigid and sticky, leading to blockages in blood vessels. These blockages can result in severe pain, organ damage, anemia, and various other complications.

Sickle cell anemia is caused by a mutation in the hemoglobin gene and is most prevalent among individuals of African, Mediterranean, Middle Eastern, and South Asian descent. It is a lifelong condition that currently has no cure, but management and treatment options are available to alleviate symptoms and improve the quality of life for those affected.

What should Black patients be aware of?

Regarding disparities in sickle cell anemia, it is crucial for Black people to be aware of several key factors. First, sickle cell anemia disproportionately affects individuals of African descent, with approximately 1 in 365 African Americans being born with the condition. This disparity highlights the importance of early screening and genetic counseling within Black communities to identify carriers and provide appropriate guidance.

Second, access to quality healthcare and specialized treatment centers can vary significantly, contributing to disparities in the management of sickle cell disease. Black individuals may face challenges in accessing the necessary medical care and resources, leading to poorer health outcomes. Advocacy for improved healthcare access and culturally competent care is essential to address these disparities.

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