The Sickle Cell Disease Association of America received the Abbey S. Meyers Leadership Award from the National Organization for Rare Disorders. The award honors organizations that serve members with solid leadership in advocacy and education. The organization will receive its award on June 26th during the National Organization for Rare Disorders’ Living Rare, Live Stronger Patient and Family forum. It will be a live ceremony at the Rock & Roll Hall of Fame in Cleveland, OH.
“We’re grateful for the recognition at the Sickle Cell Disease Association of America,” said Regina Hartfield, president, and CEO of the association. “It wouldn’t have been possible without the dedication, hard work, and unwavering commitment of the sickle cell community, including our sickle cell warriors, caregivers, staff from the national office, and partners. They deserve all the praise.”
About The Sickle Cell Disease Association of America
The Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure. The association and more than 50 member organizations support sickle cell research, public and professional health education, and patient and community services.
Sickle cell disease is an inherited blood disease causing red blood cells to take a sickle shape, which leads to blockages that prevent blood from reaching parts of the body. As a result, people with sickle cell complications can experience anemia, jaundice, gallstones, stroke, chronic pain, organ damage, and premature death. No universal cure exists.
About The National Organization for Rare Disorders
The National Organization for Rare Disorders is an independent advocacy organization representing all patients and families affected by rare diseases in the U.S. The organization works together with over 300 disease-specific organizations to improve the lives of those impacted.